CDG is rare. LOVE isn’t.
G’day!
We are CDG Crew, aka Lucy, Liam & Reggie.
Our son Reggie was diagnosed with ALG1 Congenital Disorder of Glycosylation (CDG) at six months of age. We created CDG Crew in order to raise awareness, build community and shine a light on CDG. If you’re here to learn, support and stand alongside us, we welcome you to the crew.
All proceeds raised by CDG Crew will be donated to CDG Care, helping fund vital research to find treatments that enhance the quality of life for children living with CDG.